Natalia ~ Embracing Life ~ One Moment at a Time

Monday, January 30, 2012

Rick Santorum's Daughter Bella Has Trisomy 18 Genetic Disorder - Support for Trisomy Families


Trisomy Advocacy Group - Trisomy HELP and HOPE click here
SOFT USA Support Organization for Trisomy 18, 13 and Related Disorders click here
Living with Trisomy 13 click here
Trisomy 13 Archive 2005-2010 click here
Trisomy 13 Patau Syndrome BlogSpot click here
TRIS Tracking Rare Incidence Syndromes click here
Ironmanforkids - SPIN to JOY Events click here



Posted by Trisomy 13 - Patau Syndrome Support at 4:09 PM 0 comments
Labels: chromosome, disorder, genetics, health news, palliative care, perinatal, prenatal, trisomy, trisomy 13, Trisomy 18, Trisomy advocacy
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Trisomy 13 - Patau Syndrome Support
August 25th 2000... and they said "she has trisomy 13, and she would probably not survive the week..." and I said, "well she's alive and we will treat her as I would any of my living children, we would do what we could with Prayers, Love and Medical Technology..." and here we are 11+ years later... :) About the Photo: Natalia 5years old - Full Trisomy 13 - Patau Syndrome - Kindergarden at Blind Children's Learning Center, Tustin, California http://blindkids.org (*I highly recommend this Early Intervention Program for the Visually Impaired) *At birth we were told of the Causes of Trisomy 13. We were told the risk factors, prognosis, and life expectancy. We chose treatment, looking at each individual medical symptom. Choosing to treat the symptoms not the syndrome. One day at a time, we have Triumphed over Trisomy 13! To view more than 300 families who Share their Child's 'Unique Life Journey' within their story and pictures go to: http://www.livingwithtri13.org http://www.trisomy13archive.com
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Blog Archive

  • ▼  2012 (6)
    • ►  May (5)
      • SOFT - Trends in Healthcare, Professional Viewpoin...
      • The Ultimate Trisomy Information Center for Trisom...
      • One More Soul Fostering God's Plan for Love, Chast...
      • Current & Up to date - Trisomy 13 News and Events
      • The SOFT Times (Quarterly Newsletter) just arrived...
    • ▼  January (1)
      • Rick Santorum's Daughter Bella Has Trisomy 18 Gene...
  • ►  2010 (3)
    • ►  January (3)
      • Signing Drink -- Right on Q
      • Praying for a MIracle... this is the year... Prais...
      • Natalia Skiing with www.usarc.org at OneTrueMedia....
  • ►  2009 (3)
    • ►  November (1)
      • Natalia's Grandfather is now an Author - Life's Vi...
    • ►  October (1)
      • Clifford comes to School
    • ►  June (1)
      • Introducing Natalia