Trisomy.org is the internet’s most complete source of medical and family resources for trisomy 18 & 13

NEW WEBSITE HOME PAGE Design..
What is Trisomy 18?
What is Trisomy 13?
What are the Related Disorders?
Trisomy 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22



So much information... Click here to go DIRECTLY to the Trisomy.org website.
Slideshow, Videos, Family Stories, Professional Articles and Literature, E-care book,
Facebook Page and Group support communities where families gather to share their experiences.

SOFT is the internet’s most complete source of medical and family resources for trisomy 18 & 13.

♥ For Expectant Parents

♥ For those Parenting a Child

♥ For those Remembering a Child

♥ SOFT Welcomes Medical Professionals

Trisomy 13 Syndrome ~ Patau Syndrome ~ Life Expectancy ~ Medical treatments and care for children - a free download!

www.trisomy.org 

Having a Living Survivor with full trisomy 13, www.Trisomy.org is my go-to site for the last 15 years when searching for family support information or professional resources to share with Natalia's Doctors and Therapists. Please check out their HOME Page of the website. They have a wealth of information. ~ ThereseAnn, mom to Natalia Marie (Living with Trisomy 13, 15 years old in 2015)

*Click here for Natalia Marie's SOFT story page

SOFT is the internet’s most complete source of medical and family resources for trisomy 18 & 13.

VISIT the SOFT WEBSITE for an extensive  library of Medical Publications, including research, care guidance and quarterly newsletters.  

“The Carebook:” The nationally recognized book about caring for children with trisomy 18 and 13 – a free download!

What is Trisomy 18? or 13? or Related Disorders?

Trisomy refers to having three copies of a chromosome in a cell, rather than the usual two…read What is Trisomy

♥ Trisomy 18 occurs in about 1 in 7,000 live births and is the result of an extra copy of the 18th chromosome being present in cells.…read Trisomy 18 Facts.

♥ Trisomy 13 occurs in about 1 in 10,000 live births and is the result of an extra copy of the 13th chromosome being present in cells.…read Trisomy 13 Facts.

♥ What are Related Disorders? Mosaicism, partials, translocations and other chromosomal disorders are variations of a full trisomy…

Trisomy 13 LIFE facebook Group 2015 - Families Transformed by Love

Trisomy 13 LIFE facebook Support Group 

Click here

Trisomy13LIFE facebook Page Click here

PRENATAL, PRE-BORN, LIVING and GRIEF Support.Trisomy13LIFE families, through their own grief and pain, reach out to help others on this very unique journey with Trisomy 13. All these families have lived and are living with a Trisomy 13 diagnosis and the reality of how it changes lives. With Courage, Grace, and Hope they continue on. Experiencing the transformation of grief into “Thanksgiving JOY.”

Many families gathering together again from the

Original Living with Trisomy 13 .org Community.

Trisomy 18, Trisomy 13 Awareness Month (March) - Follow www.TRISOMY.ORG and Facebook Pages for events

ITS THAT TIME OF YEAR AGAIN. CELEBRATING TRISOMY AWARENESS MONTH
MARCH 2015
FOLLOW THE www.TRISOMY.ORG EVENTS on the website and Facebook Pages

www.trisomy.org

SOFT Support Organization for Trisomy 18, 13 and Related Disorders
https://www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFTrelatedDisorders

SOFT'S Annual Trisomy Awareness Page
United and Together we Stand... Trisomy Strong https://www.facebook.com/TrisomyAwareness.SOFT

Submit your: Trisomy Child's Story &  Jumping 4 Trisomy Videos,
Purchase  tee shirts, bumper stickers, trisomy strong wristbands and more...
Create a Facebook Trisomy Awareness Profile photo and add a 

Trisomy Awareness banner to your Facebook page.

(use the facebook links above the photo)

Contact SOFT www.trisomy.org or www.trisomytalk.com for more info

"Every Life is a Gift" March for Life DC and Walk for Life West Coast - Highlighting the Challenging Prenatal Diagnosis of Trisomy 21, Trisomy 18, Trisomy 13 and Spina Bifida

WATCH MARCH FOR LIFE EVENTS NOW on
EWTN Eternal Word Television Network

http://www.ewtn.com (you can view off the website,  EWTN APP or check your local listing for the EWTN schedule).

I was very happy to see the March for Life 2015 theme is “Every Life is a Gift.”
They are addressing the challenging prenatal journey when families are given a poor prenatal diagnosis, highlighting the trisomy experience and many pressures put upon women and families to abort these unique babies.

EWTN TV  will be following the PRO-LIFE events

March for Life 2015 DC http://marchforlife.org/

Walk for Life 2015 West Coast http://www.walkforlifewc.com/

Pray with the Bishops to End Abortion 

On January 22 our nation will mark the 42nd anniversary of Roe v. Wade, the Supreme Court decision that made abortion legal throughout the U.S.

Since that tragic decision, more than 56 million children's lives have been lost to abortion, and many suffer that loss -- often in silence. 

Join thousands of Catholics across the country coming together in prayer for a "culture of life" from Saturday, January 17 -  Sunday, January 25!
http://www.usccb.org/about/pro-life-activities/january-roe-events/nine-days-of-prayer-penance-and-pilgrimage.cfm

Remember the UNBORN Powerful Virtual Video Memorial click here

Motherhood And The Gift Of The “Rite For The Blessing Of A Child In The Womb” - United States Conference of Catholic Bishops

The Rite for the Blessing of the Child in the Womb can be done by a priest or deacon and is available in English and Spanish.  The Rite opens with readings of the Visitation, the Annunciation, the prophecy of Sarah’s conception of Isaac, or other similar readings.  It includes a blessing for the mother to “grant her comfort in all anxiety and make her determined to lead her child along the ways of salvation,” the text reads.  And there is a blessing for the father to “grant him courage in this new responsibility and make him an example of justice and truth for this child.”  An excerpt of the blessing reads:  Click for PDF (English and Spanish) 

Trisomy 13 Life Worth Living 

I've added a January 2015 update on Natalia's most recent progress on her SOFT Story page. Click here http://trisomy.org/?our-story=natalia-marie

Be sure to visit the SOFT website and Facebook Page for daily updates on trisomy living.
Click here http://trisomy.org