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Monday, July 23, 2012

Neonatal Research Blog on the family experience of trisomy 13 and 18

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TRISOMY LIFE trisomy 13 Patau syndrome trisomy 18 Edwards syndrome and images 


“Our children are not a diagnosis”: the family experience of trisomy 13 and 18
One of the most well-published academic neonatologists posted an article about our trisomy 13/18 children. He offers great advice to his colleagues. 
Click here for full Neonatal Research Blog article

Many wonderful comments too!!!
50 Plus at this posting!
Click here

33 Years Strong SOFT Organization for Trisomy 18, 13 and Related Disorders has been the ROCK of Trisomy Families with yearly conventions, medical literature, books and quarterly newsletters, be sure to view their publications off the website. 

trisomy.org 


SOFT has been supporting Trisomy Families for 33 + Plus years
For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org
Collage created by Barb Farlow International Patient Safety Advocate 
(Text within image)
OUR COMMUNITY HAS A VOICE
Janvier A, Farlow B, Wilfond B. The Experience of Families With Children With Trisomy 13 and 18 in Social Networks. 
Pediatrics  July 23 10.1542/peds.2012-0151
With heartfelt gratitude to Dr. Annie Janvier and Dr. Ben Wilfond 


Natalia - Full Trisomy 13 http://www.trisomyfavoritethings.blogspot.com


1 comment:

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