Christmas in Heaven - Official Lyric Video for Maribeth Johnson - Mom to Abbie Ann (Trisomy 13 embraced and loved for 36 weeks)

Inspired by Abbie Ann who lived 36 weeks with Trisomy 13. Christmas in Heaven - Official Lyric Video for Maribeth Johnson - SOFT Family Stories shares the iTunes, website and story behind the music.
http://trisomy.org/our-story/abbie-ann-johnson/

SOFT Facebook Page

https://www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFTrelatedDisorders/posts/629157053792002

Natalia is approaching her 13th Birthday - Living with Trisomy 13

Natalia 13 years old - Living with full Trisomy 13

Trisomy.org SOFT Family story page http://trisomy.org/?our-story=natalia-marie

Family Trisomy Support Information - TRISOMY.org

Growth and Weight Chart Information under the RESOURCES drop down menu

~ SOFT Trisomy Registry Information ~  It's FREE

http://trisomy.org
Click the REGISTRY drop down menu

Register to receive access to the Online quarterly 

SOFT Times newsletter highlights Articles, 

Trisomy Life Experiences and Events, Photos and Family Stories

SOFT Trisomy 18, 13 and Related Disorder Family Stories 

Mom and Natalia with her Sea World Float,
She LOVES pool time.

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Trisomy.org Growth Chart Images 

2013 SOFT International (Annual) Conference Photos

SOFT Facebook PAGE 

SOFT Facebook Group

SOFT Stroll for HOPE - Providence

SOFT Stroll for Hope  ~ Join Trisomy 18, 13 and Related Disorders Annual Fundraising Campaign
Held at the Annual SOFT Conference
see the Website for more Information www.trisomy.org

http://www.firstgiving.com/softstrollforhope

Donate today to help SOFT support Trisomy Families

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  Natalia's HOPE

  
  

Trisomy Mother's Baby and Children - SOFT Support Organization for Trisomy 18, 13 and Related Disorders Mother's Day 2013 Slideshow Presentation

SOFT Trisomy Families Celebrate Mother's Day!
Look at this Beautiful Collection of Mother's and their babies and and children, embracing cherished moments. 

Slideshow Presentation 
trisomy.org  (click here)
(scroll down the page to view)

March is Trisomy Awareness Month - 2013

SOFT Support Organization for Trisomy 18, 13 and Related Disorders invites you to meet our children through photos provided by their families and scripted by SOFT parent Gerri Meggett of the SOFT Trisomy Awareness committee. 

Come and “enjoy the SOFT rainbow” of life and love with words to make you smile at www.trisomy.org New photos will be featured each day of March. 

Support Organization for Trisomy 18, 13 and Related Genetic Disorders (SOFT) www.trisomy.org 

March is Trisomy Awareness Month! 

SUBMIT your Triosmy Awareness Event and Inspired IDEAS on the SOFT website. trisomy.org/trisomy-awareness-month 

Be sure to add the SOFT Page and Group to your Favorites *adjusting your notification delivery so you can see the daily activity. 

SOFT's Facebook PAGE www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFTrelatedDisorders
SOFT's Facebook GROUP

www.facebook.com/groups/TrisomySOFT 

EWTN It's EVERYWHERE ~ I did not know this! LOVE IT!!!

EWTN - WE'RE EVERYWHERE!

It's easier than ever to access EWTN and enjoy all the Global Catholic Network has to offer!

With English and Spanish programs offered through television, radio,
online and even on your mobile phone, we can truly say, "EWTN is everywhere!"

2013 - NEW *** TRIsoMY Favorite Things *** BLOG

BLOG - NEW 2013 TRIsoMY Favorite Things 
13th Monthly Gift Give Away page.

Natalia is approaching 13 years... How awesome is that? I could only dream she would have survived this long. What a journey!

2013 TRIsoMY Favorite Things.
Its a work in progress as everything is, adjusting as we go on this life journey.

TRIsoMY Favorite NEWs and VIDEOs on SOFT trisomy.org 

2013 SOFT USA Support Organization for Trisomy 18, Trisomy 13 and Related Disorders (trisomy.org)  Launched their new website format. What a welcome surprise to see all the updated changes. Easy to access Trisomy Medical Professional Information and a wonderful Trisomy Family Stories page.  The SOFT website offers Trisomy Families Hope and a wealth of Information for  Trisomy Awareness News and Resources for Trisomy Special Needs Families