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Showing posts with label edwards syndrome. Show all posts
Showing posts with label edwards syndrome. Show all posts

Wednesday, September 30, 2015

Trisomy.org is the internet’s most complete source of medical and family resources for trisomy 18 & 13

NEW WEBSITE HOME PAGE Design..
What is Trisomy 18?
What is Trisomy 13?
What are the Related Disorders?

Trisomy 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22



So much information... Click here to go DIRECTLY to the Trisomy.org website.
Slideshow, Videos, Family Stories, Professional Articles and Literature, E-care book,
Facebook Page and Group support communities where families gather to share their experiences.


TAM Postcard front

Thursday, March 13, 2014

March is Trisomy Awareness Month

www.TRISOMY.org

Free Information & Literature for  Families:  Clicking this link takes you to a brief form which, when completed, opens a page with many free documents about trisomy.  Select what interests you and read, print or save it.    This free information includes Trisomy 18, Trisomy 13 and Other Chromosome Disorders fact sheets, growth and surgery information, an explanation of common problems, sample newsletter,  conference and book order information, and much more.   At the bottom of this home page, several helpful and inexpensive books can be ordered.  Para  documentos en espaƱol, clic aqua.

 Trisomy 18 – What is it? …click to read “Trisomy 18 Facts.“  This syndrome is a disorder of human chromosomes which occurs in approximately 1 in 7,000 live born infants, due to the presence of an extra #18 chromosome…

 Trisomy 13 – What is it? …click to read “Trisomy 13 Facts.  This syndrome is a disorder of human chromosomes which occurs in approximately 1 in 10,000 live born infants, due to the presence of an extra #13 chromosome…

♥ Other Trisomy or Related Conditions:      Many families have children with other chromosomal disorders. Perhaps the best explanation for these many disorders is found in a Related Disorder Facts presentation by Dr. Stephen Braddock, Professor of Clinical Genetics, given at a SOFT Conference. Also, read about Dr. John Carey’s presentation at a  SOFT conference.   A useful video can be found here.













3 Tickets for $10 or
9 Tickets for $25
Enter as often as you’d like during the month of MARCH!
Winners name will be draw by SOFT’s President, Barb VanHerreweghe on March 31st
When DONATING, be sure to ADD the term *SPECIAL TREATS JAR RAFFLE* in the Special Purpose Donations BOX right above the SEND MY DONATION button.
http://trisomy.org/about-us-trisomy/donate-to-soft/ 

* A big THANK YOU to Penny, Devon’s momhttp://trisomy.org/our-story/devon-victor/ who created this Special Treats Jar. (Valued at $80)
1) A special needs child being pushed by an Angel surrounded by flowers, butterflies, dragonflies under a Rainbow in the Heavenly Clouds
2) Heavenly Angels over the rainbow, grabbing the balloons rising to the heavens
3) Tree of Life where birds, butterflies and dragonflies gather
4) A families love is shared around the world

You can see more of Penny’s creative talents on her Facebook page Clay Cuties by Pennyhttps://www.facebook.com/ClayCutiesbyPenny

Tuesday, May 14, 2013

Trisomy Mother's Baby and Children - SOFT Support Organization for Trisomy 18, 13 and Related Disorders Mother's Day 2013 Slideshow Presentation

SOFT Trisomy Families Celebrate Mother's Day!
Look at this Beautiful Collection of Mother's and their babies and and children, embracing cherished moments. 

Slideshow Presentation 
trisomy.org  (click here)
(scroll down the page to view)

Friday, March 1, 2013

March is Trisomy Awareness Month - 2013

SOFT Support Organization for Trisomy 18, 13 and Related Disorders invites you to meet our children through photos provided by their families and scripted by SOFT parent Gerri Meggett of the SOFT Trisomy Awareness committee. 



Come and “enjoy the SOFT rainbow” of life and love with words to make you smile at www.trisomy.org New photos will be featured each day of March. 

Support Organization for Trisomy 18, 13 and Related Genetic Disorders (SOFT) www.trisomy.org 
March is Trisomy Awareness Month! 
SUBMIT your Triosmy Awareness Event and Inspired IDEAS on the SOFT website. trisomy.org/trisomy-awareness-month 
Be sure to add the SOFT Page and Group to your Favorites *adjusting your notification delivery so you can see the daily activity. 
SOFT's Facebook PAGE www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFTrelatedDisorders
SOFT's Facebook GROUP