Trisomy 13 Syndrome ~ Patau Syndrome ~ Life Expectancy ~ Medical treatments and care for children - a free download!

www.trisomy.org 

Having a Living Survivor with full trisomy 13, www.Trisomy.org is my go-to site for the last 15 years when searching for family support information or professional resources to share with Natalia's Doctors and Therapists. Please check out their HOME Page of the website. They have a wealth of information. ~ ThereseAnn, mom to Natalia Marie (Living with Trisomy 13, 15 years old in 2015)

*Click here for Natalia Marie's SOFT story page

SOFT is the internet’s most complete source of medical and family resources for trisomy 18 & 13.

VISIT the SOFT WEBSITE for an extensive  library of Medical Publications, including research, care guidance and quarterly newsletters.  

“The Carebook:” The nationally recognized book about caring for children with trisomy 18 and 13 – a free download!

What is Trisomy 18? or 13? or Related Disorders?

Trisomy refers to having three copies of a chromosome in a cell, rather than the usual two…read What is Trisomy

♥ Trisomy 18 occurs in about 1 in 7,000 live births and is the result of an extra copy of the 18th chromosome being present in cells.…read Trisomy 18 Facts.

♥ Trisomy 13 occurs in about 1 in 10,000 live births and is the result of an extra copy of the 13th chromosome being present in cells.…read Trisomy 13 Facts.

♥ What are Related Disorders? Mosaicism, partials, translocations and other chromosomal disorders are variations of a full trisomy…

SOFT Times Newsletter

SOFT Times Newsletter

The SOFT Times - A newsletter for families 

with children who have chromosome disorders

The SOFT Times newsletter has helped connect families for nearly three decades. Letters from families and articles from professionals are compiled, edited and printed in a quarterly newsletter, which is mailed to SOFT members who have paid their current yearly membership fee, and to professional members.

The SOFT editor is a parent volunteer who takes on this task four times a year. SOFT pays for the printing and mailing of the SOFT newsletters. The free SOFT welcome packets for new families contain a sample newsletter as well as information about trisomy conditions and the SOFT support organization...MORE

There is a link on the SOFT page to see a SAMPLE NEWSLETTER.. well worth a view.

SOFT has been supporting Trisomy Families for 33 + Plus years

For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org

Looking for Trisomy Support? Be sure to also check out  FACEBOOK Pages and Groups.