Trisomy Support at SOFT at www.Trisomy.org (regarding broken url links)

These Trisomy Resources will help you find support within your Trisomy Journey

SOFT Support Organization for Trisomy 18, Trisomy 13 and Related Trisomy Disorders
www.trisomy.org - FREE Care of the trisomy infant and child EBOOK
Natalia's SOFT story

ITA International Trisomy Alliance
www.internationaltrisomyalliance.com
FREE Preparing for your child's arrival and children's books which explain the trisomy 18 and trisomy 13 facts - International translations

TRIS Tracking Rare Incidence Syndromes  www.coehs.siu.edu/tris
Ongoing study project many trisomy case studies and publications.

7/15/2014 

SOFT CHANGED SERVERS AS THEY ARE GROWING WITH ALL THE WONDERFUL
TRISOMY AWARENESS FAMILY, PROFESSIONAL AND MEDICAL CARE SUPPORT.

It will take some time for me to adjust all the LINKS on this blog going to specific SOFT areas on the SOFT website. If you come upon any broken links as you arrive on the SOFT website,  just continue to the SOFT HOME page and SEARCH for the topic you are looking for.

Trisomy.org the 2014 Annual SOFT International Conference is going on now in Virginia

For the MOST Current Trisomy Support www.trisomy.org
Just a quick link right to the FACEBOOK page where photos and videos are being shared.
https://www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFTrelatedDisorders

Trisomy Care of the Infant and Child with Trisomy 18 and 13 Related Syndromes

The updated 2014 version of Ann & John Carey's "Carebook" is finished and has been posted to the website. It is an e-Book and is a FREE download.

www.Trisomy.org

To PRINT do directly to the PDF

Trisomy Documentary Shares the Experience Newly Diagnosed Families Face

CLICK photo to view the Trailer
http://labeledthemovie.com/

Like Labeled Documentary   on Facebook! (click here)

Trisomy Family and Professional Support www.trisomy.org

If your Trisomy Baby Could talk... making the right decisions for your Trisomy Journey

To all the Trisomy Parents wondering what decisions to make after their child's diagnosis...
Prenatal or Postnatal (afterbirth diagnosis) 
Carrying to Term, Perinatal Hospice, Palliative Support, 
Medical Treatment, Surgical Intervention and Supportive Living Care.
If your Baby could talk... this is what your baby would say...   
View on youtube - https://www.youtube.com/watch?v=kXtllFhGOsI

View on youtube - https://www.youtube.com/watch?v=kXtllFhGOsI

NEW FAMILY FREE INFORMATION PACKET at www.TRISOMY.org
LIKE and FOLLOW Trisomy.org's Facebook Page and Group

International Trisomy Alliance http://www.internationaltrisomyalliance.com
ITA publications you can download and print FREE

March is Trisomy Awareness Month

www.TRISOMY.org

Free Information & Literature for  Families:  Clicking this link takes you to a brief form which, when completed, opens a page with many free documents about trisomy.  Select what interests you and read, print or save it.    This free information includes Trisomy 18, Trisomy 13 and Other Chromosome Disorders fact sheets, growth and surgery information, an explanation of common problems, sample newsletter,  conference and book order information, and much more.   At the bottom of this home page, several helpful and inexpensive books can be ordered.  Para  documentos en español, clic aqua.

 Trisomy 18 – What is it? …click to read “Trisomy 18 Facts.“  This syndrome is a disorder of human chromosomes which occurs in approximately 1 in 7,000 live born infants, due to the presence of an extra #18 chromosome…

♥ Trisomy 13 – What is it? …click to read “Trisomy 13 Facts.“  This syndrome is a disorder of human chromosomes which occurs in approximately 1 in 10,000 live born infants, due to the presence of an extra #13 chromosome…

♥ Other Trisomy or Related Conditions:      Many families have children with other chromosomal disorders. Perhaps the best explanation for these many disorders is found in a Related Disorder Facts presentation by Dr. Stephen Braddock, Professor of Clinical Genetics, given at a SOFT Conference. Also, read about Dr. John Carey’s presentation at a  SOFT conference.   A useful video can be found here.

WWW.TRISOMY.ORG

3 Tickets for $10 or
9 Tickets for $25
Enter as often as you’d like during the month of MARCH!
Winners name will be draw by SOFT’s President, Barb VanHerreweghe on March 31st
When DONATING, be sure to ADD the term *SPECIAL TREATS JAR RAFFLE* in the Special Purpose Donations BOX right above the SEND MY DONATION button.
http://trisomy.org/about-us-trisomy/donate-to-soft/ 

* A big THANK YOU to Penny, Devon’s momhttp://trisomy.org/our-story/devon-victor/ who created this Special Treats Jar. (Valued at $80)
1) A special needs child being pushed by an Angel surrounded by flowers, butterflies, dragonflies under a Rainbow in the Heavenly Clouds
2) Heavenly Angels over the rainbow, grabbing the balloons rising to the heavens
3) Tree of Life where birds, butterflies and dragonflies gather
4) A families love is shared around the world

You can see more of Penny’s creative talents on her Facebook page Clay Cuties by Pennyhttps://www.facebook.com/ClayCutiesbyPenny

TRISOMY.ORG - SOFT E-mail Blast! - Current Events! - Hot Trisomy NEWS Topics & Updates!

Did you receive a SOFT e-mail blast within your e-mail inbox yesterday? 
5 Current SOFT Community topics of interest.
If not... Register NOW ITS FREE!!!

Join the www.Trisomy.org 

SOFT Facebook Page and SOFT Facebook Group 

Valentine’s Video of Our Amazing Trisomy Children on then SOFT Trisomy.org website

Trisomy Valentine’s Video - http://trisomy.org/?page_id=14463

To view off YOU TUBE https://www.youtube.com/watch?v=5ez27Rl_3rI

Welcoming 2014 Global - International Trisomy Support Groups for Families and Professionals

Welcoming 2014 Global Outreach
International Trisomy Alliance Support Group
http://www.internationaltrisomyalliance.com/trisomy-support-groups.html