Trisomy Support at SOFT at www.Trisomy.org (regarding broken url links)

These Trisomy Resources will help you find support within your Trisomy Journey

SOFT Support Organization for Trisomy 18, Trisomy 13 and Related Trisomy Disorders
www.trisomy.org - FREE Care of the trisomy infant and child EBOOK
Natalia's SOFT story

ITA International Trisomy Alliance
www.internationaltrisomyalliance.com
FREE Preparing for your child's arrival and children's books which explain the trisomy 18 and trisomy 13 facts - International translations

TRIS Tracking Rare Incidence Syndromes  www.coehs.siu.edu/tris
Ongoing study project many trisomy case studies and publications.

7/15/2014 

SOFT CHANGED SERVERS AS THEY ARE GROWING WITH ALL THE WONDERFUL
TRISOMY AWARENESS FAMILY, PROFESSIONAL AND MEDICAL CARE SUPPORT.

It will take some time for me to adjust all the LINKS on this blog going to specific SOFT areas on the SOFT website. If you come upon any broken links as you arrive on the SOFT website,  just continue to the SOFT HOME page and SEARCH for the topic you are looking for.

National NEWS - Study reports Trisomy kids enrich their families lives

Parents and Many Pediatricians Disagree over treatment of babies born with Trisomy 13 or Trisomy18

By Dave Andrusko

Yesterday we ran a story by Alex Schadenberg which reinforced something we know to be true but is not widely understood: That most parents of children with Trisomy 13 or Trisomy18 conditions (in this case Canadian parents) consider their child to be happy and found that their lives were enriched by the child. He drew that conclusion based on the results of a study published in the current edition of the Journal “Pediatrics.”

I’m going to pick up here on the disquieting truth that these affirming observations are very different than that attitude of many pediatricians towards these conditions.  READ MORE

SOFT has been supporting Trisomy Families for 33 + Plus years

For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org

Medical Professional Literature, Articles and Resources