TRISOMY.ORG - SOFT E-mail Blast! - Current Events! - Hot Trisomy NEWS Topics & Updates!

Did you receive a SOFT e-mail blast within your e-mail inbox yesterday? 
5 Current SOFT Community topics of interest.
If not... Register NOW ITS FREE!!!

Join the www.Trisomy.org 

SOFT Facebook Page and SOFT Facebook Group 

National NEWS - Study reports Trisomy kids enrich their families lives

Parents and Many Pediatricians Disagree over treatment of babies born with Trisomy 13 or Trisomy18

By Dave Andrusko

Yesterday we ran a story by Alex Schadenberg which reinforced something we know to be true but is not widely understood: That most parents of children with Trisomy 13 or Trisomy18 conditions (in this case Canadian parents) consider their child to be happy and found that their lives were enriched by the child. He drew that conclusion based on the results of a study published in the current edition of the Journal “Pediatrics.”

I’m going to pick up here on the disquieting truth that these affirming observations are very different than that attitude of many pediatricians towards these conditions.  READ MORE

SOFT has been supporting Trisomy Families for 33 + Plus years

For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org

Medical Professional Literature, Articles and Resources

SOFT - Trends in Healthcare, Professional Viewpoint, What does "rare" disorder mean? and Publications

SOFT USA - has added Page Updates
Please go check out all the articles and information they are adding to the website pages.

• Trends in Healthcare
• Professional Viewpoint
• What does "rare" disorder mean?
• SOFT Publications

SOFT has been supporting Trisomy Families for 33 + Plus years

For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org