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Showing posts with label information. Show all posts
Showing posts with label information. Show all posts

Wednesday, September 30, 2015

Trisomy.org is the internet’s most complete source of medical and family resources for trisomy 18 & 13

NEW WEBSITE HOME PAGE Design..
What is Trisomy 18?
What is Trisomy 13?
What are the Related Disorders?

Trisomy 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22



So much information... Click here to go DIRECTLY to the Trisomy.org website.
Slideshow, Videos, Family Stories, Professional Articles and Literature, E-care book,
Facebook Page and Group support communities where families gather to share their experiences.


TAM Postcard front

Tuesday, June 5, 2012

Celebrating Trisomy Survival ADvertising at its Best!


I just love this !  I believe this is one of the largest visual efforts in image of Trisomy Awareness - technology at its best! Happy Birthday Giuliana, you are looking very healthy - sharing what Trisomy Health and Wellness can be! Beautiful!
~ and Happy Birthday!

June 4, 2012 Raising It to New Heights (click for photo on Jill & Giuliana's blog)

"For Giuliana’s  2nd birthday announcement, we now proudly display THREE 10x 22 huge digital billobards spaced throughout high traffic areas in the city. "

"It has always been our mission to help advocate for those who face Trisomy 13/18 and are not offered options other than Hospice, as we were not.  Parents need to hear both sides of the story, and remember to keep realistic in the approach to this diagnosis. Families have a right to unbiased information upon which to make critical decisions related to their child. Realizing that there is a great spectrum involved and sadly some children with Trisomy 13/18 may not survive, still others may only live a short time. Now, new evidence is showing that in many cases intervention can help more children to live longer lives."

SOFT has been supporting Trisomy Families for 33 + Plus years
For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org

Saturday, May 19, 2012

The Ultimate Trisomy Information Center for Trisomy 18, 13 and Related Disorders

SOFT USAThe Largest Global Trisomy Network of Support 
Supporting Families for 25 Plus years with Trisomy Related Syndromes 

Pam’s Papers:  Research and Commentary Papers about Children with Trisomy Disorders, written by SOFT Member Pamela Healey, PhD. http://www.trisomy.org/resources/pams-papers

and more.....

International SOFT Support Sites
America USA
Australia
Canada
England
Germany
Ireland
Italy
Japan
New Zealand
Romania
Scotland

SOFT has been supporting Trisomy Families for 33 + Plus years
For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org

Friday, May 18, 2012

The SOFT Times (Quarterly Newsletter) just arrived today in the mail.

I highly suggests you join this wonderful Global Support Network
To Receive yours send $25.00 to SOFT ~ Supporting Trisomy Families 25 PLUS years.
SOFT Membership Information


The SOFT Times - A newsletter for families with children who have chromosome disordersThe SOFT Times newsletter has helped connect families for nearly three decades. Letters from families and articles from professionals are compiled, edited and printed in a quarterly newsletter, which is mailed to SOFT members who have paid their current yearly membership fee, and to professional members. Read More on the SOFT website 

SOFT Sample Newsletter
Past SOFT Times Newsletter topics



SOFT has been supporting Trisomy Families for 33 + Plus years
For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org