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Showing posts with label resources. Show all posts
Showing posts with label resources. Show all posts

Wednesday, September 30, 2015

Trisomy.org is the internet’s most complete source of medical and family resources for trisomy 18 & 13

NEW WEBSITE HOME PAGE Design..
What is Trisomy 18?
What is Trisomy 13?
What are the Related Disorders?

Trisomy 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22



So much information... Click here to go DIRECTLY to the Trisomy.org website.
Slideshow, Videos, Family Stories, Professional Articles and Literature, E-care book,
Facebook Page and Group support communities where families gather to share their experiences.


TAM Postcard front

Thursday, June 21, 2012

You Can Help CREATE CHANGE in how Trisomy kids are Medically Treated by SHARING YOUR FAMILY Trisomy 18, 13 or Trisomy Related Disorder STORY

SHARE Your living trisomy Family experience on SOFT USA. 
Support Organization for Trisomy 18, 13 and Related Disorders

SOFT USA is the one website Families & Professionals go to when looking at the most current literature on Living Surviving Trisomy kids. The National Library of Medicine NLM and the National Institute of Health NIH Share the SOFT website as the 33year strong website supporting Families and Professionals. Your childs' story trisomy medical issues and experience will make a difference for families to follow.

Be sure to enter the Data (Survey) on Your Trisomy Child to help with the most current Evidence Based Medicine Treatment and Practices for our Trisomy Children

Noahs Never Ending Rainbow  "Noah's Never Ending Rainbow continues to be a support when most other organizations stop giving. They not only care about the person affected with this horrible disorder but also the family."  
Read More...


SOFT has been supporting Trisomy Families for 33 + Plus years
For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org

Saturday, May 19, 2012

The Ultimate Trisomy Information Center for Trisomy 18, 13 and Related Disorders

SOFT USAThe Largest Global Trisomy Network of Support 
Supporting Families for 25 Plus years with Trisomy Related Syndromes 

Pam’s Papers:  Research and Commentary Papers about Children with Trisomy Disorders, written by SOFT Member Pamela Healey, PhD. http://www.trisomy.org/resources/pams-papers

and more.....

International SOFT Support Sites
America USA
Australia
Canada
England
Germany
Ireland
Italy
Japan
New Zealand
Romania
Scotland

SOFT has been supporting Trisomy Families for 33 + Plus years
For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org